基于政策文本分析的医学科学数据管理与共享现状及发展策略探究

• 作者： 覃惠迪 ¹ 张丁钒 ¹
• 作者单位：
  1.  桂林医学院
• 提交时间：2024-09-29

摘要: [目的]在健康医疗大数据快速发展的背景下，医学科学数据的管理与共享是推动“健康中国”战略实施的重要环节。本文旨在探讨如何有效管理、共享和利用医学科学数据，以应对数据资源分散、标准不统一、隐私保护等挑战，从而为提升医疗服务质量、优化资源配置、加速医学创新提供理论和实践支持。[方法]本文首先通过文献梳理与政策解读，分析了医学科学数据在健康医疗领域的重要性及其在国家政策体系中的定位；然后通过案例研究与国内现状分析，揭示了当前医学科学数据共享过程中存在的主要问题，如知识产权归属不明确、数据标准化水平不高、数据伦理与隐私保护存在缺陷等。同时，选取发达地区的典型案例，总结其在数据标准化、规范化、安全性等方面的成功经验，提供可借鉴的路径。最后，基于这些问题和启示，提出了优化我国医学科学数据管理与共享的建议。[结论]研究发现，尽管国家政策大力支持医学科学数据的共享，但在数据的整合、标准化以及隐私保护等方面仍存在诸多障碍。通过发达地区成功经验借鉴，适应中国国情的数据标准化与法律法规体系建设亟待完善，有效的数据共享将有助于提升整体医疗服务的普惠性和精准性，尤其在偏远地区有望缩小医疗服务差距。本文为未来健康医疗大数据背景下的医学科学数据管理提供了理论依据与实践参考，进一步明确了数据共享在推动医学科技创新和实现“健康中国”战略中的关键角色。

Abstract: [Objective]In the context of the rapid development of healthcare big data, the management and sharing of medical scientific data is an important part of the implementation of the ‘Healthy China’ strategy. The purpose of this paper is to discuss how to effectively manage, share and utilize medical scientific data to meet the challenges of dispersed data resources, inconsistent standards, and privacy protection, so as to provide theoretical and practical support for improving the quality of healthcare services, optimizing the allocation of resources, and accelerating medical innovation. [Methods]This paper firstly analyses the importance of medical scientific data in healthcare and its positioning in the national policy system through literature combing and policy interpretation; then through case studies and analysis of the domestic status quo, it reveals the main problems existing in the current process of medical scientific data sharing, such as unclear intellectual property rights belonging, low level of data standardization, and deficiencies in data ethics and privacy protection. At the same time, typical cases in developed regions are selected to summarise their successful experiences in data standardisation, normalisation and security, and to provide a path that can be learnt from. Finally, based on these problems and revelations, suggestions for optimising the management and sharing of medical science data in China are put forward. [Conclusion]The study found that although national policies strongly support the sharing of medical science data, there are still many obstacles in data integration, standardisation, and privacy protection. Drawing on the successful experiences of developed regions, the construction of data standardisation and laws and regulations adapted to China’s national conditions needs to be improved, and effective data sharing will help to improve the overall universality and accuracy of healthcare services, especially in remote areas, which is expected to narrow the healthcare service gap. This paper provides a theoretical basis and practical reference for medical scientific data management in the context of healthcare big data, and further clarifies the key role of data sharing in promoting medical science and technology innovation and realising the strategy of ‘Healthy China’.

• 来自： 覃惠迪
• 分类： 信息资源管理 >> 图书馆学
• 稿件状态： 已投稿会议
会议名称： 数智赋能学术期刊创新发展 ——第四届信息资源管理期刊发展论坛征文（2024年7月 —2024年10月）
• 引用： PSSXiv:202410.00108 (或此版本 PSSXiv:202410.00108V1)
  DOI:10.12451/202410.00108
  CSTR:32012.36.PSSXiv.202410.00108
• 推荐引用方式： 覃惠迪,张丁钒.基于政策文本分析的医学科学数据管理与共享现状及发展策略探究.哲学社会科学预印本平台:https://zsyyb.cn/abs/202410.00108.[PSSXiv:202410.00108V1] (点此复制)